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about us > updated 02-13-08
About Us
Founded in 1959, the Mary
M. Gooley Hemophilia Center has been treating
people who suffer from bleeding and blood related disorders
for over 45 years.
Our Center was one of the first chartered chapters of the
National Hemophilia Foundation (NHF), and was also the first
free-standing, hemophiia treatment center offering comprehensive
care in the United States. We are a 501c3 not-for-profit corporation
and are governed by a locally based Board of Directors.Our
Center cares for families with bleeding disorders in the 14-county
region around Rochester, NY.
Our mission is to improve the
lives of people affected by bleeding disorders and iron overload.
We strive to fulfill this mission by providing world class
treatment, advocacy and research to individuals and families
affected by various inherited disorders related to hemostasis
(blood clotting) and iron overload. To learn more about each
genetic disorder we treat click on the names below:
We endeavor to increase patient
independence through self-care management and to improve quality
of life for our patients and their loved ones.
Staffed by a select team of highly
trained doctors, nurses and social workers, we work hard to
provide each patient with the education and skills they need
to effectively manage their condition, lessen their fears
and live an active, normal and productive life.
Led by our world-renowned Director
of Research, Dr. Peter Kouides, our Center is also engaged
in many research studies designed to learn more about each
disorder and the efficacy of various treatment options.
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