About the Center

The Finger Lakes Triathlon is the largest annual fund raiser for the Mary M. Gooley Hemophilia Center. Proceeds from the race go to support programs and services offered to patients year round.

Founded in 1959, the Mary M. Gooley Hemophilia Center has been treating
people who suffer from bleeding and blood related disorders for over 45 years.
Our Center was one of the first chartered chapters of the National Hemophilia Foundation (NHF), and was also the first free-standing, hemophiia treatment center offering comprehensive care in the United States. We are a 501c3 not-for-profit corporation and are governed by a locally based Board of Directors. Our Center cares for families with bleeding disorders in the 14-county region around Rochester, NY.

Our mission is to improve the lives of people affected by bleeding disorders and iron overload. We strive to fulfill this mission by providing world class treatment, advocacy and research to individuals and families affected by various inherited disorders related to hemostasis (blood clotting) and iron overload. To learn more about each genetic disorder we treat click on the names below:

Hemophilia
von Willebrand Disease
Hemochromatosis
Gaucher Disease
Thrombophilia
We endeavor to increase patient independence through self-care management and to improve quality of life for our patients and their loved ones.

Staffed by a select team of highly trained doctors, nurses and social workers, we work hard to provide each patient with the education and skills they need to effectively manage their condition, lessen their fears and live an active, normal and productive life.

Led by our world-renowned Director of Research, Dr. Peter Kouides, our Center is also engaged in many research studies designed to learn more about each disorder and the efficacy of various treatment options.